Success Stories

Stories of children on the CMF protocol and the changes it is making in their lives







  John -- 5 year old boy on protocol since 9 mos. old



John Michael Connell was born on 3-20-2005, six weeks early and diagnosed

with Down syndrome.  This is the little boy from the CMF video, who at age two, was working with Joanne Mothes on letters and word recognition.  He began the protocol at 9 months of age, the first person to start the protocol that young.  Now we have many babies as young as 1 month that start most of the items on the protocol.  John is now 5 years old and an amazing little boy!  He sings, he works puzzles, he kicks a ball and he speaks in complete sentences with proper syntax. John will start kindergarten this fall in a regular classroom on track with typical children his age.  To read John's full story, please click on the link below:


John's Success Story


Watch John's videos







          


Katie -- 2nd grader on the protocol        



We can't be more thrilled at how our daughter, Katie, has responded to the protocol!

 

In May, 2009, Katie was declining academically in second grade and her negative behaviors were increasing in both frequency and severity.  As parents and teachers we tried everything to help Katie improve in any way possible.  This was very difficult given Katie has ranked within the upper 5% of children with DS in most areas.  Her private therapists and pediatrician also noted the increase in difficulties with her.

 

Thankfully, the  Changing Minds DVD was loaned to us from a therapist via another DS parent.  Following this, I traveled to Columbus, Ohio to meet with parents of other children on the protocol and was thrilled to hear their successes.

 

In July, 2009 we started Katie on the protocol.  Beginning the first 2 weeks with just the minerals: (based on her weight 62lbs)

Gingko Biloba (3x60mg pill)

B12/B6 1 pill

folic acid (400 mcg)

multivitamin and extra Vit. C

Currently taking synthroid due to hyperthyroidism

We saw NO side effects at all.

 

2 weeks later, we added:

Prozac (5 mg)

phosphatidylcholine 2 pills/day

body bio balanced oil 4 pills/day

 

Prior to school starting, we began Ritalin due to indications for behavior (7.5 mg/ 2x day)

 

Miracle Changes:


We didn't tell anyone about Katie's protocol other than her physician. 

On her first week of school - she did GREAT.  The first night we did homework - she took 3 full pages of homework to her desk and insisted on doing it all by herself.  After a little time, we helped her, without a struggle (typical for all last year) and she finished all 3 pages in 20 minutes - record time with a smile on her face!  We couldn't believe it!  One month into school, the principal called me and asked what was going on with Katie - she was like a new kid!  All the teachers and aides also saw a huge improvement in Katie and truly couldn't believe it!  Even Katie's pediatrician noticed a remarkable change in her behavior and calmness just 3 months into the protocol!

 

Since then, just a few setbacks.   Bad behavior was seen around January, 2010 and we figured out that she'd gained 10% of her body weight and we never increased the med's.  After 1 month of increased Ritalin and Prozac (1/2 tabs each) she was back on track.  Noted increased behavior problems 2 weeks ago and increased Ritalin by 1/2 tab again and within days back on track and doing well in school.

 

Overall - Katie has improved by nearly a year and a half of second grade schooling from last year.  She now is playing at other friend's houses - which she could never do prior to the protocol.  She's also continuing dance and cheerleading with typical girls all because of the protocol!  We can't say enough good things about it!

 

We're more than happy to share Katie's story with anyone interested in listening.  Even Katie's little friend with DS, Ellie, has now been on the protocol after seeing Katie's positive changes and she's making great strides too.

 

Julia -- Katie's mom


Watch Katie's video



 

 Meet Lily -- 7 months old (on protocol for 4 months)


 


 

Lily started the Protocol on January 27, 2010.

She started out taking 1 tsp. Body Bio Balance Oil, 1 tsp. PC and the recommended amount of Ginkgo for her weight at the time. On February 27, I started giving her 60 mg Ginkgo and she has been taking that for the last two months, along with the PC and the Oil.


So far she can roll from her back to her tummy (she started that about a month and a half ago) and from her tummy to her back  (started about 2 weeks ago) She is now 7 months old and she has started playing with her feet (because she wants to and not because I put them in her hands) She has been sleeping through the night for the last several months with no problem. (I heard that sleep can be hard for kids with DS)


She went to the Doctor recently and she weighs 19 lbs 5 oz. and she is 26.5 inches long (Big girl).  I really think she got a great head start on growth because she didn't have any heart problems to deal with. She can push up with her hands flat on the ground while on her tummy, and she loves to be on her tummy. She has started to reach for toys while on her tummy, and holding herself up with the other arm. When I feed her she gets distracted by anything that walks by, especially her brother.  I am just glad that she is interested in the world around her. In the last couple of weeks she has started making the funniest sounds with her lips. She will spit and do raspberries and I just love it! She likes to sing along with the music playing in the car and she is rarely content to just sit alone and play.  She smiles at everything!  She loves to hold her toys and now she has started mouthing them. 


Since she started solid food, she has struggled a bit.  However, in the last couple of weeks she has started opening her mouth when the food comes her way and she keeps her tongue in her mouth while she swallows her food. 

 

Jill -- Lily's mom